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A UK-based charity which helps individuals and boost blood flow naturally families affected by Glycogen Storage Disease by placing people in contact, providing information and support, publishing a magazine and holding conferences, workshops, programs and household occasions. IamGSD - International Association for Healthy Flow Blood capsules Muscle Glycogen Storage Disease. A non-revenue, affected person-led worldwide group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide. IPA - International Pompe Association. A non-profit, federation of Pompe illness patient's groups world-extensive. It seeks to coordinate activities and share expertise and data between totally different teams. EUROMAC - EUROMAC is a European registry of patients affected by McArdle Disease and other uncommon neuromuscular glycogenoses. CoRDS - Coordination of Rare Diseases at Sanford (CoRDS) is a centralized worldwide patient registry for all uncommon diseases. They work with patient advocacy groups, including IamGSD, individuals and researchers. CORD - Canadian Organization for Rare Disorders (CORD) is a Canadian national community for organizations representing all those with uncommon disorders. CORD supplies a powerful widespread voice to advocate for well being coverage and Healthy Flow Blood circulation a healthcare system that works for these with uncommon disorders. NORD - National Organization for Rare Disorders (NORD) is an American nationwide non-revenue patient advocacy group that is dedicated to individuals with uncommon diseases and the organizations that serve them. EURODIS - Rare Diseases Europe (EURODIS) is a unique, non-profit alliance of over 700 uncommon disease patient organizations throughout Europe that work together to enhance the lives of the 30 million individuals dwelling with a rare illness in Europe.

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